Wow, two posts in a 24-hour span. I am on a roll. Plus, Trevor is leaving tomorrow to go back to the States to fly a couple of trips to make some cash to offset a little of the crazy amounts of money we spent to come here, so I don't figure I will have much time up update while I am taking care of Fletcher solo during the sixteen days he will be gone.
Last night was fine. Fletcher fell asleep a little before midnight (not bad since he didn't wake up from his nap until 7:30pm) and slept straight until 8:30 am this morning. Trevor took him over to the therapy room for stander time, while I tried to catch a few more z's, but that didn't work out. Instead I decided to download some pictures (slideshow below). Come to find out that there was some kind of Beike representative touring the floor and she took a picture and did a mini-interview with Trevor and Fletcher, so we'll see if that ends up in a newsletter or something later on. Of course I asked Trevor if he at least took off the dirty bib Fletcher was wearing (we feed him in the stander at times to distract him) and you can guess the answer to that one.
We don't have any more stem cell infusions this week, so our schedule for the next couple of days consists of roughly an hour each of stander, PT, and electric wave therapy per day. Trevor leaves bright and early tomorrow morning (Friday) and we have Saturday and Sunday free. A lot of times groups will hire a driver and go to the zoo, or silk market, or other local attractions on free days, so I will have to check around and see if anythings brewing. I think they will give us our schedule for next week on Sunday, but I am guessing that he will have lumbar infusions on Monday and Friday.
Until then, enjoy this slideshow of the past week in stem-cell land...
7 comments:
Fletcher looks like he's having so much fun! I'm so glad to hear everything is working out so well!
Thanks for all the info, updates, and pictures. Fletcher looks great!
Erin, so glad you made it there safely and that things are going well for you. I look forward to reading about your journey! Take care
Ohhhh, have fun shopping while Trevor is not looking (wink, wink).
Kim
Hi Erin! Sounds like things are going really well! Thanks for the updates and pictures. I'll be praying a lot for these next couple weeks with Trevor gone. All the best! Stephanie
16 days as solo mom in China...daunting to say the least! Sounds like Fletcher and his parents are handling this like champs, but it doesn't mean it's not incredibly difficult.... particularly listening while your little one cries on the other side of a door and trying to distract an uncomfortable baby. Much love from Houston!
Erin, you are amazing. Looking forward to the updates on Fletcher's progress.
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